Announcement Please understand this is a reply only. There will be posts of new information in the IC community or things about this board or its members.
Tests Discuss Hydrodistention, PUF questionaire, rescue instillation (when used to show proof of pain relief), in office cystoscopy, and all other diagnostic tests.
Not Yet Diagnosed Do you not have an official diagnosis of IC or Painful Bladder Syndrome, or a related illness. Are you unsure what you have? Do you have symptoms that you cannot yet explain? Discuss that here!
Medications Discuss medications you are on or are interested in taking here. There are possitives and negatives to all medications. We want to hear about both!
Other alternatives Discuss Reflexology, Aroma therapy, Meditation, Visualisation, Tai Chi, Massage, Yoga, Homeopathy, Acupuncture, and all other alternatives for IC or related illnesses here.
self help life style tips, pillows, and all the other little things (or big things) that can make a big difference in feeling better
Hormones Hormones play a big roll in many patients IC and in some patients it is a lessor roll. They are also a major factor in any persons health.
Surgery Discuss Hydro-distention Cystoscopy (when a therapy), Laser surgery, bladder removal, and all other types of surgery here.
Interstim info Interstim information. Those interested in the interstim support forum that can't yet see it should ask an administrator for assistance.
Praying and Spiritual Uplift This is meant to be a place where true prayers may be said together as well as other food to feed the spirit. Things may lean in being Christian based but if you want another religion board just ask. This isn't meant to leave people out just to open the door for Spiritual growth together.
Bladder picture The last 3 on the botton show lighter and kind of lumpy those are Hunner ulcers,. However, the last one- botton right is a picture of where the Ulcer was lasered off.
Bladder picture 2 Hunner Ulcer of IC bladder The white spots are the thin parts of the bladder. This is post lazer surgery of hunners.
More ICandME Open this board to get to links of other parts of ICandME
Nerve pain or symptoms this is complicated subject since all pain and all symptoms are at least somewhat influenced by the nerves. Some things more so than others. After having symptoms for a long time your nerves may get dammaged and continue to send the signals even if your bladder is looking better. Discuss treating the nerve aspect here
Blog list and Intro All members are welcome to have a blog here. If you would like to please contact the administrator (ICKatrina). You can reply to threads in a blog but only the blog owner may start them in that category unless the owner states otherwise. Have fun!
Click on the name to get that person's blog!
Katrina I am a married women entering her 30's that has been dealing with health problems most of her life.
store list The section brings you to the stores of IC patients. You need to open this board to get to the list. :) If you do choose to join Cafepress.com because of ICandME please put Katrina Spaeth in referal spot :)thanks!
fshop explanation Active Members of ICandME may be able to link a store or design products for a store to help them make some money while dealing with their illness. Contact ICKatrina if you want to be a part of this.
ICandME members business ICandMe active members may be able to post links to their business while they remain active members. The business will have to pass inspection though. Health related things are unlikely to pass.
Newbie Kit $6.18 Simple advise from patients that have lived with IC for a while about all those things that come up while living with IC. Basic, strait forward, list of advise. Nothing extra.
Click on the name to get that person's blog!
