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Help I have a question! Need help right away? Ask Away! Only board that validating members can post on. |
38 | 247 | November 05, 2009 02:38 am In: mono challengeBy: nudnik |
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Introductions Say hi, let us know who you are a little something about yourself. |
20 | 144 | September 10, 2009 08:39 am In: hi i'm newBy: jen48446 |
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Announcement Please understand this is a reply only. There will be posts of new information in the IC community or things about this board or its members. |
100 | 270 | September 23, 2009 08:51 am In: Welcome LisaBy: ICKatrina |
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Tests Discuss Hydrodistention, PUF questionaire, rescue instillation (when used to show proof of pain relief), in office cystoscopy, and all other diagnostic tests. |
7 | 42 | September 21, 2008 04:57 pm In: In office cystoscopyBy: JOY |
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Diet Diet is the best treatment we have for IC. Please share questions and tips here! |
36 | 170 | September 23, 2009 08:48 am In: dietary changes that I made...By: ICKatrina |
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Sharing Recipes/Meal planning |
16 | 38 | November 23, 2008 02:47 pm In: fruits?By: JOY |
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Not Yet Diagnosed Do you not have an official diagnosis of IC or Painful Bladder Syndrome, or a related illness. Are you unsure what you have? Do you have symptoms that you cannot yet explain? Discuss that here! |
9 | 61 | August 09, 2007 02:20 pm In: i dont know what to thinkBy: Dixiefireball |
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Medications Discuss medications you are on or are interested in taking here. There are possitives and negatives to all medications. We want to hear about both! |
25 | 91 | April 13, 2009 06:49 pm In: CyclosprorineBy: ICKatrina |
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Instillations Discuss DMSO, Rescue instillations, and all other instillations here. |
5 | 26 | September 23, 2009 08:47 am In: Ozone TreatmentBy: ICKatrina |
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Other treatments Discuss any other treatments besides medications and instillations here. |
13 | 21 | July 14, 2008 12:10 am In: urethra suppositoriesBy: JOY |
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Herb Discuss herbal treatments for IC here. |
14 | 44 | October 25, 2008 03:00 pm In: Cold and Flu seasonBy: jen48446 |
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Other alternatives Discuss Reflexology, Aroma therapy, Meditation, Visualisation, Tai Chi, Massage, Yoga, Homeopathy, Acupuncture, and all other alternatives for IC or related illnesses here. |
25 | 73 | November 11, 2009 04:18 pm In: meditation for anxiety reliefBy: jen48446 |
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self help life style tips, pillows, and all the other little things (or big things) that can make a big difference in feeling better |
32 | 137 | November 17, 2009 11:43 am In: new yahoo group that we cre...By: jen48446 |
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Hormones Hormones play a big roll in many patients IC and in some patients it is a lessor roll. They are also a major factor in any persons health. |
13 | 34 | October 28, 2009 02:32 pm In: Bio Identical Hormone DoctorsBy: jen48446 |
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Coping Skills or Helps |
4 | 11 | September 10, 2009 08:36 am In: How do you do it?By: jen48446 |
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Surgery Discuss Hydro-distention Cystoscopy (when a therapy), Laser surgery, bladder removal, and all other types of surgery here. |
19 | 123 | November 14, 2008 11:09 am In: Here I go again!By: ICKatrina |
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Interstim info Interstim information. Those interested in the interstim support forum that can't yet see it should ask an administrator for assistance. Interstim is a surgery that has some real risks but has helped some patients with their frequency and some patients with retention. Since it is surgery it is something that should only be considered after other options have not worked. It has a lot of risks will you will find in the pinned thread of this board. I encourage everyone that is considering Interstim to please read the risks!! Like everywhere on the ICandME both sides of any issue are allowed here. Please be respectful of everyone's opinion, feelings, and experiences. The ICandME does not have a standing on the use of the Interstim beyond learning all you can prior, get the best doctor you can, and try other things before surgery of any kind. |
2 | 4 | September 14, 2008 07:16 pm In: Resrouces on InterstimBy: Dixiefireball |
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Related Illnesses Discuss things like PFD, IBS, Endo, Fibro, Allergies, and all of the other illnesses here. |
32 | 114 | December 13, 2008 11:24 pm In: PFDBy: ICKatrina |
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Praying and Spiritual Uplift This is meant to be a place where true prayers may be said together as well as other food to feed the spirit. Things may lean in being Christian based but if you want another religion board just ask. This isn't meant to leave people out just to open the door for Spiritual growth together. |
31 | 47 | December 26, 2008 02:15 pm In: So very Thankful!By: JOY |
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resources |
42 | 101 | February 09, 2009 11:40 am In: check out the health websit...By: ICKatrina |
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low income help |
15 | 43 | December 15, 2008 07:34 pm In: toys for totsBy: ICKatrina |
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The rest of ICandMe |
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Bladder picture The last 3 on the botton show lighter and kind of lumpy those are Hunner ulcers,. However, the last one- botton right is a picture of where the Ulcer was lasered off. |
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Bladder picture 2 Hunner Ulcer of IC bladder The white spots are the thin parts of the bladder. This is post lazer surgery of hunners. |
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More ICandME Open this board to get to links of other parts of ICandME |
1 | 0 | April 26, 2007 05:12 pm In: terms.icandme.comBy: ICKatrina |
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IC Patient Teresa's Story Never Give Up Teresa's story with IC. |
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Treatment by Symptom |
15 | 48 | October 07, 2008 02:04 pm In: Difference between PUF and ...By: JOY |
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Nerve pain or symptoms this is complicated subject since all pain and all symptoms are at least somewhat influenced by the nerves. Some things more so than others. After having symptoms for a long time your nerves may get dammaged and continue to send the signals even if your bladder is looking better. Discuss treating the nerve aspect here |
4 | 14 | January 26, 2007 09:30 pm In: Pudendal Nerve EntrapmentBy: Dixiefireball |
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Blog list and Intro All members are welcome to have a blog here. If you would like to please contact the administrator (ICKatrina). You can reply to threads in a blog but only the blog owner may start them in that category unless the owner states otherwise. Have fun! ![]() Click on the name to get that person's blog! |
33 | 106 | September 26, 2008 06:52 pm In: I visited hell and dang wha...By: Dixiefireball |
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http://www.cafepress.com/icandmeshop |
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store list The section brings you to the stores of IC patients. You need to open this board to get to the list. :) If you do choose to join Cafepress.com because of ICandME please put Katrina Spaeth in referal spot :)thanks! |
1 | 1 | November 11, 2006 12:19 am In: Further explanation.By: Dixiefireball |
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fshop explanation Active Members of ICandME may be able to link a store or design products for a store to help them make some money while dealing with their illness. Contact ICKatrina if you want to be a part of this. |
1 | 0 | October 30, 2006 09:10 pm In: General explanationBy: ICKatrina |
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ICandME members business ICandMe active members may be able to post links to their business while they remain active members. The business will have to pass inspection though. Health related things are unlikely to pass. |
3 | 5 | December 15, 2006 07:54 pm In: General explanation.By: ICKatrina |
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4 guests, 0 members 0 anonymous members |
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Our members have made a total of 5688 posts We have 223 registered members The newest member is nudnik Most users ever online was 61 on September 27, 2008 11:45 am |